"Whoever said winning isn't everything never had a child with cancer." - Anonymous

Sunday, October 25, 2009




I finally downloaded pics from my camera after WAAAYYY too long!! 548 pics in all. So I thought I would post a few.

Things here have been going well. We had a long clinic appointment about a week ago, Eli got his chemo, pentamadine, spinal, then we even stayed for the IVIG which takes 3 hours!! We were there all day, but it was uneventful and this way we won't have to have another long appointment.

The H1n1 virus continues to scare me...we haven't gotten any vaccines, and I really don't know when we will, or if. I have decided to just listen to the Oncologist and follow their recommendations. They will only do what is right and the best for my kids, and I trust them whole-heartedly. We have gotten this far, haven't we?

Thanks for checking in. Hope everything is going well for you and yours.

Maria

Thursday, October 01, 2009

Today was an uneventful day at the clinic....other than they got a new WII. See, some creep (and this is a nice word) stole the WII from the clinic. So, it isn't enough that he or she is a thief....they had to steal from children with cancer! WOW!!

Anyway, we were there for a short time. They were able to give Eli his flu shot which is really good. We can't give it to him while he is on steroids, so that means really only 3 weeks a month, and they didn't have it last month. So he has been given the shot. Now we wait for the H1N1 debate. I told our nurse that I am not comfortable with Eli getting a vaccination that I feel has been majorly rushed through without enough testing time. She agreed, and said that they will probably recommend that we wait for at least a month to be sure...he can't get the mist anyway and that is all I think they are giving out at first.

Sunday we went to the celebration for Kinsey, one of our friends with leukemia. She has finished her treatment!!!!!! Yea!! No more LP/s, meds, or trips to the ER every time she gets a fever. We are soooo excited and happy for her family. As I am hoping it will be with Eli, she will probably not remember any of this journey once she is older....what an amazing blessing and the answer to many, many prayers. It made John and I really excited as we began talking about what we will do in April to celebrate....it used to seem so far away, but now it is right around the corner...


We have been staying busy. Eli is having a great time at school and playing soccer. The older boys are loving soccer as well. We remain crazy...but very normal. Thanks for your prayers!!!

Maria