Our weekend was a good one. The weather here was beautiful on Saturday. The boys and I went to the beach and spend some time. I still have some anger issues whenever I am out having a good time like that. I get angry that we cannot all be enjoying it as a family, and especially angry that Eli cannot be enjoying all of this like the other little ones his age. I know in the big scheme of things when we get past this Eli probably won't remember missing anything, but cancer really sucks!!
Today was another long day at the clinic. Eli has been having some real difficulty with the new antibiotic that the dr prescribed for this sinus infection that he has. He really has not been eating and has been throwing up whenever he has to take his meds. This time it doesn't seem to be intentional, his stomach just seems to be really queesy and when you put a med on it, he throws it up. So, today he was weighed and he has lost another pound. His glucose and his sodium levels were also down, probably due to the lack of eating. So, we got some fluids and also another transfusion. The dr switched the antibiotic to another that may not be quite so hard on him. Hopefully we will have some success. I hate that he is sick now, when he isn't getting any chemo. He still continues to be the same sweet, energetic little guy he always is....it truly amazes me.
Eli's ANC is now at 10...so we will continue to live in our bubble for this week. I hope his counts rebound this week because we have everything planned to start chemo on Monday and go into the hospital. John has tried to schedule his trips around us being in the hospital for 3-4 days every 2 weeks for the next two months, but if the first treatment is postponed, they all will be. Please pray that Eli's counts will rebound quickly.
We didn't have our conversation with the dr today. She had been on vacation last week, so we agreed to come in on Friday and talk to them then. So, our big decision gets to be put off for another 5 days.....this is perfect for me, the propetual procrastinator!!! I will let everyone know how it goes....
"Whoever said winning isn't everything never had a child with cancer." - Anonymous
Monday, April 16, 2007
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2 comments:
Hey Maria,
I bet anger is just one of the many emotions you are having to deal with lately - yours and your boys'.
I'm glad you got to get out in the sunshine and have fun with your older boys. Eli will have many fun days that will outnumber these tough days.
I hope your arm is healing quickly and Eli's numbers rebound. We're thinking of you always. Lots of hugs, Ann
Hi Maria,
My name is Maggie. My 23 month old son, Ryan was diagnosed with pre-b ALL, standard risk-high on 3/3/07. I stumbled across your blog while surfing online for more info on ALL. I can really relate to your anger issues and much, much more. I live across the country, on the other coast, in Cali. Our family blog url is:
http://thecomptons.typepad.com/straightouttacompton/
Thanks for posting your story. I am always sad to hear about those who share our plight, however, it helps to see how others are able to manage and move along and eventually past this difficult time. I wish for you, Eli and the rest of your family the very best of outcomes and for a return to a somewhat normal life.
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