"Whoever said winning isn't everything never had a child with cancer." - Anonymous

Thursday, May 24, 2007

What a crazy week!!

Sam had his last day of preschool and his Graduation on Tuesday night. Wow, where has the time gone? I will post a picture as soon as I get a chance. He looked so grown up in his little white gown....Mom and Dad and John's mom and aunt came to see him along with John, Jacob, and myself. He was quite proud of himself. Sallie stayed and watched Eli for me at home..I know his counts have been good, but I am still not up for crowds indoors!!

Jake is entering his last week of second grade. This week has been field day, and a party tomorrow. I am not sure what they are going to do with him on Tuesday and Wednesday of next week. He is ready to start third grade, and more pressing, to begin his summer. Both older boys will be doing lots of camps this summer. Not knowing what our hospital stays will be like, I thought that would be the safest thing to do.

The past couple of days with Eli have been trying, We got to the clinic yesterday at 8:30 and everything seemed to go like clockwork. But again time stood still here at MUSC and we couldn't get aroom until close to 6pm and the chemo was not started until around 3 am. One of the most frustrating things was that they didn't get his oral meds to me until close to 10, so I had to wake him up and give them to him holding him down as he screamed. The big yellow bag of methotrexate will be finished at 3 am tonight and then we start seeing if he clears it like before. I told John that we might not get out until Sunday because of the later start, but we will see.

On the Thanksgiving side of things, Eli is handling everything again like a trooper. He has not gotten sick (they are giving him all 3 anti nausea drugs) and seems to feel fine. His counts were back up to a whopping 2900 ANC, platelets at 308,000 and a hemoglobin of 11.4....all of these are fantastic numbers, I can only hope they stay there. His LP went great...so no surprises.

John will come and relieve me tomorrow after work, and I will be more than ready to go home.

Again, our MRI is scheduled for May 30. Please pray that his brain lesions have remained small or gotten better. Thanks for the prayers...they are working...we are proof!!!

2 comments:

Darraugh Valli said...

YOu are all in my prayers constantly!! LEt us know if you need anything. Love You!
Darraugh

Anonymous said...

Thanks for the note to us about the baby. He is still doing great! I'm glad things are continuing to go well. We're still thinking about you.
Krissie