"Whoever said winning isn't everything never had a child with cancer." - Anonymous

Monday, August 27, 2007

And we are......STILL in the hospital!!! Unfortunately, it looks like we will be here for a while. Eli's blood counts have hit rock bottom and we aren't sure when they will begin to rise again. Today his ANC was a whopping 0...I guess the good thing is that we have nowhere to go but up now, but it is just that we don't know how long it will take. Our Onc right now is Dr. Hudspeth, the new doc from NY, and she said her "rule of thumb" is an ANC of at least 200 and rising.....so we will wait.

The pain has gotten better today, which is a relief. Unfortunately, we also gave him the chemo that we suspect is the problem again today....so we will see a little later in the week if the pain comes back. We think it will. We have started him on another med, Nuerontin, that is supposed to help with this nerve pain, but it takes 7-10 days to become effective. So we will see.

We are in good spirits. Eli has been able to play in the atrium every day and we go outside at least once a day too.

MUSC decided to get rid of the wireless service here, so the new computer we bought for our stays is useless...boy that has made me mad. Something about it "interfering" with aquipment. What I want to know is...is that really true or is it a tale? Kinda like when you are on an airplane..will answering your phone really bring the plane down? If it did would they really let you carry them on the plane in the firstplace? Just a thought as I sit on the computer in the nurses station instead of my brand new lap top in my room......rrrrrr!!!

Thanks for checking in. Thanks for the phone calls...and thanks for the prayers.

Maria

I am thankful that Eli's pain has lessened.......I am SOOOOOO thankful that TODAY was our last treatment in DELAYED INTENSIFICATION and now we will move (hopefully) to some easier chemo and easier days.......

2 comments:

maggie said...

Hi Maria,

Just checking in to let you know that you, Eli & the rest of your family are in my thoughts and prayers. I'm so sad to know that Eli has had to deal with such pain from the Vincristine. Mom to mom- it makes me angry!!!! I am glad to hear that he is doing better. I hope his counts are up soon so that they can discharge him and let you both go back home. As far as the computer issue, I know that at Ryan's hospital, City of Hope, they do not allow wireless for the same reason- interference; however, they do have some kind of network cable access, where they allow laptops to be connected to the network in each patient's room, but again, it's not wireless. So sorry to hear about your frustrations. Hang in there, you will both be home soon. Lots of love and hugs from California,

Maggie

Jennifer E. said...

Hi Maria,

I have been reading your postings all these months, and I still cannot fathom what you are going through. I know how hard it is to be a parent to three healthy children so I cannot imagine what it is like for you and John. Please know that you are always in our thoughts and especially our prayers!

Jennifer