Today was another long clinic day, although it didn't start out that way. We went in for chemo and pentamadine. The pentamadine takes 1 hour to infuse and the chemo only takes 15 min. Well, the pentamadine came up so quickly I thought we would be home by 11....then Jennifer had Bobby come and tell us that the "hood" in the oncology pharmacy had gone down just as they were preparing our chemo and they had to wait for someone to come fix it before they could prepare our chemo and get us out of there. Do we have the best luck or what?! So, we finally got the chemo around 1 or so. I got home just as the boys were getting home from school, so it was pretty good timing.

Funny thing Eli did today: Jennifer was covering for us because our normal nurse, Wendy, had lots of patients. Eli really is very relaxed when he is there, so this was no big deal. Well, she comes up to him and says, "Can I see your tail?" meaning that she wanted to see his tube so she could hook him up to the IV. Well, this was lingo that Eli is not familiar with...we call it a tubie. So he says. "It's not a tail" and proceeds to pull his pants down and show her his pee pee!!! We then told him what she meant and he pulled his shirt up so she could hook him up. Jennifer wasn't the least bit flustered by it, having two small boys at home. I thought it was funny because Eli has seen so many docs and such that he is so compliant when they ask him to do something. Either of my other boys would have said, "What?!"

We saw some friends that we hadn't seen in a while and they look great. It is so great to see how quickly these kids rebound and adjust.

Check out this video. One of the guys mentions Eli in the beginning. It is a group of men that biked cross country to raise money for Childhood Cancer. It is an amazing clip and I can't wait to see the documentary that will follow. As I have said many, many times before, I think if more people took a look at pediatric cancer they would become outraged by all of it and maybe something would be done about it. It is groups like these cyclists that will make that happen.

http://www.youtube.com/watch?v=h6hEygLJu2


That's all I have today.

Thanks for checking in.

Maria