"Whoever said winning isn't everything never had a child with cancer." - Anonymous
Thursday, January 25, 2007
Two good days with good news!! The past couple of days have been better, with things looking up. We got the genetic testing back and that looks positive. There are none of the "bad" chromosomes and there is even and extra 1/2 chromosome which makes the leukemia a little easier to beat. Eli is seeming more like himself everyday. He is grouchy with the doctors and nurses, not wanting to even look at them. This is much better than the little boy that was simply lying in the bed not wanting to do anything. We go and play everyday, although the laxatives seem to be working a little too much, and we are going to have to try to find a "happy medium". He is still not walking and the PT people have been very slow in getting to us, it isn't that he is paralyzed, just not wanting to put any weight on the legs. I have noticed it some in his lower arms as well when he crawls. The chemo that he is getting can cause muscle weakness as well as a tingling feeling, which could be the reason for the difficulties. We are now getting another MRI to see what that looks like. I went home last night and our computer isn't working properly, so these may be a little more spaced out. Bellsouth is sending some part today. The doc said we would be here for another week at least, another 2 or so at most. So hopefully there is an end to this hospital stay. Then we can try to figure out what life with this disease will be for us. Keep praying!!
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8 comments:
Crowley Family,
Prior to working at CIGNA, I worked for a Catholic Health Care System, where every day started with a prayer. There is so little that we can do from afar, except keep you in our prayers and thoughts. I thought that I would share some of the prayers with you through out your journey.
LORD, ENFOLD IN YOUR LOVE OUR ACHING HEARTS, CHERISH US, SOOTHE US, CONSOLE US, TEACH US TO BELIEVE IN A FUTURE BEYOND TEARS.
God Bless, Barb Hammer
So glad to hear Eli's improving day by day. Elizabeth, Jenna and Michael send out our prayers to you
and we are hear if you need us to help.Betsy
Maria, My heart and prayers are with Eli and your family. I am so glad he will be discharged soon and come home. I can help with the pediatric PT. Call me if you want to talk- 270-8947.
Maria and John,
We have been keeping up with the latest news via the Bishop. We have forwarded the messages to Ruthy and Pablo, Macho and Zeny, so Eli and you are being held up in prayer in NY, Atlanta, Miami, and La Romana....remember the old saying, that if God brings you to it, He will bring you through it.
God bless,
Sherry, Jorge, Jorgito and Titi
Maria, I am Sherry's sister. She has told me much about you and your family throughout the years, and recently shared your son's condition with me. I simply wanted to know that your whole family is now in prayers arising from Vancouver, WA, as well as those arising from Miami and the DR. -- Candy
Eli is constantly in the prayers of the Daughters of the King of Province IV, as is your entire family.
Heavenly Father, watch with us over your child Eli and grant that he may be restored to that perfect health whcih it is yours alone to give, through Jesus Christ our Lord. Amen BCP
John and Maria,
I am so happy that Eli is doing a little better. You know that we are thinking about you. Please let me know if there is ANYTHING we can do!! We miss you!
Courtney and Andy
May your faith always exceed your fears! The Holy Name Chapter of DOK at Good Shepherd, Dunedin, FL, have your blogsite address and are walking with you as you and your family make this journey in faith. May God's peace surround you on every side; and, may His blessed healing infuse you all.
Blessings, Gwendolyn Williams
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