WE ARE HOME!!! On Friday morning the doctor came by and said we could leave....I hugged her I was so happy. Eli's counts had jumped to 821 and he was still doing well, so she really said there was no need to keep us. We thought we would have to do home health for some of the antibiotics we were on, but it turns out that we could take him off of all of them but two which we can take by mouth. We thought we would be home early, but ended up coming home about 5:30.
How wonderful it is for all of us to be here. The boys played in the playroom all evening, and even in that little time I saw Eli really brighten up. Today we played and even went outside for a little while. It was a little chilly, but sunny and we went for a bike ride and walk. I could tell he was a little bit tired, but he really kept up!!! My sister called and hit it right on the nail when she said I must have the biggest smile in all of Charleston, and I think she is right.
I am going to finally put some pictures of Eli in the hospital and some of him home....
Our only challenge now is realizing that although we are home, Eli is still at the very beginnings of our journey. The way things usually go, when you come home from the hospital it means you are well, but with us it just means we get to fight this thing from here. Our counts are "up", which means he is probably at about an ANC of 1000, but the realism is that a healthy boy has an ANC of about 11,000. So we will have our challenges, and we have to be very careful to guard him from infections. A hard job during cold and flu season. As I told John, for the rest of this year we are going to have many small, healthy play dates. Eli's little frient Abrielle came over today and they played a while.
We will go to the clinic on Monday for some blood work and then Tuesday for another MRI and Spinal Tap and probably our first round of Chemo in this phase of the treatment.
But that is later, right now I am completely enjoying my laughing, smiling, happy little boys!!! I am learning to enjoy the here and now, and not be anxious over things that are to come...
5 comments:
This is such great news!!! Thanks for the photos. I can't believe how big ALL the boys are! They all look so happy to be together. The Crowley family must be glowing to be together again.
Hugs, Ann
Maria and John,
Billy & I and the kids all started jumping for joy after reading this!! We are so happy for all of you and it is great to see pictures of everyone so happy!
Love,
Krissie & Billy
Right on Maria, just "be where you are" and you will bring this family through all the trials to come. I am awed by the spped with which you have transformed, God's grace is sufficient for you! Praise God, lots of love to the whole Crowley family!
Robin & the Quick family
Maria, John, and boys,
We are soo happy for you all!! I know you all are enjoying the laughter, noise, and trucks moving throughout the house!! Happy chaos as we always say....We can't wait to see you all soon. love, the Hartnetts
I love this prayer. It came to mind when I saw the pictures and read your news:
A little drop of the sky,
A little drop of the land,
A little drop of the sea,
and a little drop of family,
On your forehead, beloved one.
To protect, to shield and to surround you.
The little drop of THREE, to fill you with graces.
Happy Days!
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