"Whoever said winning isn't everything never had a child with cancer." - Anonymous

Monday, February 26, 2007

We had a long clinic visit today, but everything was OK. Eli's platelets had dropped to 15,000 and so they needed to give him some prior to his getting his Lumbar Puncture. This added on to the regular time of just waiting for the chemo, etc. meant we were there from 9-4. He was sleepy because he had some trouble sleeping last night, so we sat/slept in the chair while we waited. He got the shot while he was sedated, which I really appreciated. Those really hurt.

Now we wait to see if the Vincristine chemo they gave him today affects his walking. It seemed to in the hospital, but we were also going through so much other stuff that we really don't know if that was the reason or not.

Eli's ANC dropped to 251 and will continue to drop. So we are again "nuetropenic" and have to stay away from things for the next couple of weeks. He seems to have a little cough but it is more nasal than anything else. But we need to watch it because these kids get so sick so fast. It is hard to keep them away from all of these sicknesses this time of year especially with the older boys. Jake had a cough and we made him wear a mask in the house. I guess I will find at what point I am creating a "bubble" for Eli, but it is hard not to want to just stay in your cave to keep him safe.

We have another clinic appointment on Thursday because the doctors think that Eli will need more blood at that point and I also think they want to check on his cold. Then next Monday is the next LP for a while. We have an MRI scheduled for March 15. I am feeling like this is going to be a full time job for a while...if in the end he is healthy, It will be worth it and then some.

Thanks for the prayers and the support. I'll update again soon.

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