No tube after all....I went into the clinic on Thursday all ready for it and the doctor really didn't want to do that just for the meds. So, he got on the phone with the neurologist and got Eli off of the phenobarbytol!!! We are now on a med that we only take 1ml of 2x a day and it tastes like coconut. He is still not happy about taking it, but the vomiting has stopped. Although I was really happy about this I wondered at the same time why we couldn't have done this 2 weeks ago when I was telling them how horrible things were getting with the oral meds. It is almost as if they didn't really take me seriously until I was as the end!!

We go back to the clinic on Monday and spend the night in the hospital Monday night for our next "round". They will give him the Cytoxin through the IV then monitor him for 24 hours. The shots start on Monday, too, but those really weren't that bad. His counts are probably up now and will stay that way for another week or so, then we will plummet.

Our MRI is now scheduled for April 12 at 9:30. I got it moved back so we could get an earlier time. It was at 11:30 and Eli can't eat or drink before...NIGHTMARE!!! So, this was things will be a little easier. He isn't scheduled for another LP for awhile, so there was no problem in waiting a little bit.

Thanks for the prayers on the meds....again, God found a way to make it better...Please pray that this next round goes well and we stay away from fevers!!!