This is Eli (or "chubb" as I like to call him) on day 18 of steroids. He is eating chips, which he has eaten 2 big bags of in a week. We finally ended the steroids on Wednesday morning, but he is still eating lots. He is really bloated looking and, truthfully, really sick looking to me. I know this is one of many side effects of the meds, but it is so hard to see my little guy looking so sad.
Last night Eli ran a fever of 99.5 or so and seemed to be breathing as though he were very uncomfortable. So we called, and John took him to the ER at 3am. They took some xrays and it seems that although he is pooping many times each day, he is constipated. So we are giving him a laxative to see if we can make him more comfortable. On a good note, his ANC is up to 1300...so we will definitely be able to begin chemo again on Wednesday.
Jake will finish "Camp Invention" today. He loves to invent things..and they take apart all kinds of appliances to see what is in them and use it for something else. Sam has been in VBS for Holy Cross and enjoyed it. I am so grateful to Kim Emerson and Danielle Theobald for picking/taking my boys this week. I was not comfortable taking Eli into rooms with loads of children. They were certainly a godsend.
I was able to go out with "the girls" for a little while last night. Thanks Robin, Crystal, Kendra, and Jennifer for staying lots longer than I am sure you planned on so I could talk about "normal" kid stuff for a while. It was just what the doctor ordered!!
Thanks for checking in...have a good weekend.
Maria
I am thankful that Eli is not sick. I am thankful that we are done with steroids and half way done with DI. I am soooo thankful that we have such wonderful and supportive friends.
Please pray for the family of Harrison, who lost his battle on Monday to leukemia. May God give them strength in this time of grief.
2 comments:
Maria, although I don't respond often to your posts, I do read them all and I am heartened to hear Eli is doing well on this terrible regime. Your strong (I won't stay "unwavering" -- I'm sure you, like many of us, have moments in the middle of the night when you doubt -- but you get it back!) faith is an inspiration. Your godmother, Sherry, has been with us for a few days, celebrating the marriage of our son (and her godson) David. IT seems a long, long time ago (and it was!) that the doctors told us David had serious health problems (although not cancer) and he survived with prayer, time and lots of good medicine. So look forward to such happy times for your little one too, as they WILL come. I am sorry I can't be of more concrete help -- like giving to YOUR blood drive, but I will take myself to the Red Cross again this week and give platelets in Eli's honor -- and they will help someone. Thinking of you and your entire family in this hard time -- Candy
Maria,
It was good to see you and Eli yesterday at the store. Although I haven't been very good lately at calls or emails, please know that my family and I are constantly praying for Eli and your family. Sean was excited that he got to see him.
You are amazing and I am honored to call you my friend!
Take care,
Erinbeth
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