"Whoever said winning isn't everything never had a child with cancer." - Anonymous

Wednesday, July 11, 2007

Today's counts:

ANC 610 (Normal 2000-6600+)
Hemoglobin 12.0 (Normal 11.0-15.0)
Platelets 216 (Normal 140-440)

Our good counts ride is over. With a count of 610 we will not be going out very much this week. The really scary thing is that we don't know if they are still going down or not. But anyway you put it, Eli is very open to infection right now. I am really glad that we got out so much the past week. It will make the staying in much easier to handle.

He is also a bit of a monster. John and I were both up at 2:30am this morning making him chicken. I know this sounds rediculous and seems as though we are giving in to him....but he screamed for at least a half hour wanting only chicken. I spoke to the doc today and he basically said to try to appease him the next week...the steroids will make him very miserable. I guess this is what it feels like to live with Dr. Jeckyl and Mr. Hyde. One second he is snuggling with me on the couch, the next he is calling me stupid. (yes, my two year old child called me stupid...and he knew exactly what he was doing.) He isn't smiling very much, and just seems mad all the time.

Taking Jacob to camp was much more difficult than I expected. He had no problems....I just hope he does well. In the back of my mind I am so sure he will, but I still worry. We will pick him up on Saturday and hear all about the great week he had.

I will try to update again this week. Hope the week goes well for you.

Livestrong,

Maria

Please pray for the family of Charlie, a little boy who lost his fight this week. May God comfort them as they go through this most difficult time.

I am thankful that Eli's chemo went well today and that he did not need blood or platelets. I am thankful there is such an amazing place as St. Christopher camp for my children to learn about community and God.

1 comment:

WendyK said...

I know that making chicken at 2:30am is no fun, but this too shall pass. We laugh at the crazy things that we did to appease our little guy during "roid rage". Kaden ate only taco shells and ketchup for a week, pancakes every night at 1am for several days, and a whole jar of pickles one day. I am happy to say that he eats normally now in LTM, but it is still funny to think of how many boxes of taco shells and pancake mix we went through in only three weeks!
Wendy Kilburn-ALL-Kids