The rollercoaster continues!! Sigh!!

Eli's counts today were:

Hemoglobin 10.2
Platelets 486
ANC 450 (No..that is not a typo. And yes, we did make them check it twice)

SOOOO, after being NPO (nothing to eat or drink at all) since midnight last night, we were finally given the ok to eat at about noon...with no procedure. The guidelines of the study that were are on are very specific that he MUST be at an ANC of 750 or greater to start a new round of chemo. So we will go back on Thursday and see where we go from here. As one of the nurses said, Eli never does it the easy way...

I am very relieved that we did the BMA last week to rule out relapse, I think I would be really scared right now otherwise. He may be brewing some little infection or it may just be recovering from the past 8 months. But I did talk to the doc about taking Eli off of some meds (his anti seizure, and the anti fungal) So we won't have to take quite so many in the next month or so.

Our nurse practicioner lost her husband last month very unexpectedly and I was asking her how she was. She told me it was day to day, but she really doesn't know where she would be without her church family. I told her I had wondered the same thing, how does someone go through something like that without that support and those prayers? I told her that it was my church family that helped me get back to standing after we were diagnosed, and I cannot imagine it without them even now. Now why can't people see that stuff when they see Christians instead of all of the negative bullsh-t? Just a thought....

Thanks for checking in....please pray for us as we go back to Clinic on Thursday for a repeat of today,..,...

Maria

I am thankful for my friend Annnie, who is coming from Denver in Feb to walk in the half marathon with us. It is amazing how true friendship overcomes miles in a way nothing else can.....thanks for being there for me....