WE ARE HOME!!!!!
Eli's counts today were:
ANC 411 (WOW...up from 173 yesterday)
Platelets 186 (Normal)
Hemoglobin 9.8
Today was a great day, although very tiring. Eli had his CT scan this morning to look at his intestines and everything looked good. He is still having some issues when pooping, but all of us want to get him home to see how it goes. With a guy this age you don't know how much of it is in his mind because it was hurting him so much before. I am hoping once he is in "his environment" he won't concentrate on it so much and it may not seem so bad. It was like Christmas at our house when the boys came home from school and Eli was here. Amazing how 3 weeks in the hospital can make you really realize how great it is to have everyone together.
My grandmother's memorial was really nice. My two uncles were there, and so were lots of friends from way back.....It was nice to remember her. My mom and dad will be going to Charlotte for the burial, I will be staying here. As John told you, I feel it was a "God Thing" on Sunday. Neither my sister nor myself had been to see her in a long time, and we both felt compelled to go see her on Sunday when
Dad called and said she wasn't doing well. We were both there when she passed and I do believe that she knew we were there with her...it was peaceful, and it gave me peace.
We will start Long Term Maintenance on Monday morning. We start with an LP (Lumbar Puncture) and we aren't sure if the doc is going to want to go with the Methotrexate or not. ( this is the one that we think gave him the seizure) So we will wait and see. But the chemo from now on should not be nearly as difficult for him...we should be able to get back to "normal" by the end of the year. It will be nice to be able to do more as a family....I am really looking forward to having us all at church worshipping together!!!
Please pray for my sister, Judi, and her family. Her husband Paul is in the hospital (had to go in this morning at 3am) with a bowel obstruction. He is in some pain, and they may have to operate.
Thanks for checking in.
Maria
I am thankful that we are home and together as a family!!!!
"Whoever said winning isn't everything never had a child with cancer." - Anonymous
Tuesday, September 11, 2007
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1 comment:
YAY! How nice it is to be home! LTM is so much easier, so welcome. It took Kaden nearly three months to get to a point where we could take him out regularly, but we have made it to church for the last two weeks, and his onc does not foresee limiting him anytime soon.
www.caringbridge.org/visit/kadenkilburn
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