"Whoever said winning isn't everything never had a child with cancer." - Anonymous

Thursday, September 18, 2008

Todays counts: ANC 1800 (good considering they increased chemo two weeks ago)
Platelets 191 (Normal)
Hemoglobin 12.1 (Normal)


Clinic went well this morning other than the whole "MUSC time" thing. I told John one morning as he called frustrated that things were taking so long that you just have to realize that it is almost like the twilight zone. The minute you step in those doors time has no meaning....

We got to the clinic at 8am and Wendy accessed us almost immedietly. Then, we went to see Cliff in the hospital while the labs came back and they ordered the chemo...well, we visited, came back to the clinic about 9:45 and the meds still weren't up...he finally started at around 11:00. So, we were able to leave a little before 1:00. But he handled everything so well!!

Because Eli's numbers looked so good and the steroids usually increase them if anything we get another 2 weeks in between visits to the clinic. That is a nice change of pace. I am already trying to plan what he and I will do together next week. Now that he is in school I feel like we don't spend much time together.

The rash continues and Dr. Pollack (our wonderful derm) took another look today. He prescribed a stronger ointment..but we ultimately came to the conclusion that the steroid pulse every month will keep the rash at bay so to speak, so we may just use the ointment and hope it continues not to bother him. As I have said, we know what it is not...it is not infectious, it is not fungal. We just can't figure out what it is...but as long as those two are ruled out, I am not going to worry about it much.

John has been out of town this week so it is just the boys and me. We have had a pretty good week. Sam played in his first football game of the season tonight and scored two touchdowns...he is one tough kid.. Jake had soccer practice and continues to do well.

Thanks for checking in, and thanks for your prayers.

Maria

I am thankful that our clinic appt went well today. I am also thankful that this has become a fact of life for Eli, not something he gets upset about or dreads. He actually seems to enjoy going to clinic every week...

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