Today was a good day at clinic, and an absolutely georgeous day here in the Lowcountry!! Eli's numbers were:
ANC 1900 (good, maybe we found the right chemo mix)
Hemoglobin 12.5 (normal)
Platelets 245 (normal..which is good because he has decided it is more fun to stand in the tub than sit and has a few bruises on his noggin to show for it!!)
I was really worried the numbers would be lower because of the cold, but what do I know anyway?! The doc said the cold isn't at all in his chest and his ears look great, so we are good to go for another two weeks. Then he gets chemo and pentamadine again, but it will be another month before he gets his next LP. I love this once every quarter LP thing...it rocks!!
I was talking to another mom in clinic today. Her little guy, Chase, has neuroblastoma and she has been taking him to Sloan Kettering in NY every month for the latest "cutting edge" treatment with antibodies. Even with that for two years, she said the chance of him relapsing is something like 70% and then the chances of getting him back into remission are tough....WOW. It takes a visit like that to really shake me and bring me on my knees thanking God that Eli has ALL...even with a relapse we would have a good shot with a BMT. But you also get to thinking again about how Pediatric Oncology is the real bright spot in the world of Cancer treatment right now...so many advances have been made...but really, are they enough???? Again, my soapbox. I tell you, I don't know what the good Lord has in store for me after all of this, but he sure is giving me a passion in a big way....
The dayschool had the firemen come to school on Wednesday...BIG HIT!!! Eli talked about nothing less the entire day...
Please pray for one of Sam's best friends, Sam L. He took a spill on the playground at school and ended up in a plastic surgeon's office and surgery the next day..he is such a trooper..please help him to heal completely and with as little pain as possible...
Thanks for checking in.
Maria
I am thankful for my family that supports me constantly.
"Whoever said winning isn't everything never had a child with cancer." - Anonymous
Thursday, October 02, 2008
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