"Whoever said winning isn't everything never had a child with cancer." - Anonymous

Friday, October 17, 2008






Whew!! I know I haven't written in a while, but things here have been busy, busy, busy.

The first pic is of the two older boys in their boyscout uniforms. It makes me so proud!! I often cannot believe how grown up they seem....

The next set are from our clinic appt. yesterday. Eli got chemo and we were there for a while. But when I tell people that, they think it is some terrible thing. So I thought I would share with you a "day at clinic with Eli Crowley". The amazing thing is Eli likes going....I have come to the realization that it now is much harder on me than him. (This is something that I thank God for everyday...I could only wish that was always true here...) In the beginning they access his port to draw blood, as you can see it is no big deal (thank you God for ports). Then he gets to watch some TV, usually a Scooby Doo movie. Then he can play in the playroom, make arts and crafts, etc. Then we usually go home. Things aren't always in that order, but they take such good care of us at MUSC that it has really become second nature for him. I sometimes have a hard time getting him to leave, especially if there is some friend that has just gotten there that he wants to play with.


Oh!! Eli's counts were: ANC 2010 (we may increase chemo at the next appt., but he is now at 100% so we really don't want to increase it until we have to.
Platelets 191 (normall)
Hemoglobin 11.6 (normal)
So everything in that dept. is going well.

The last picture is from Light the Night. Light the Night is LLS's version of Relay for Life except it is not all night, just a few hours. All participants get to carry ballons signifing whether they are walking in memory, honor, or support of those with leukemia and lymphoma. They had two honorary heroes, one adult leukemia survivor and one child, Eli. He was super excited and got a certificate and everything. It was really fun...I recommend it for next year!! Since we are doing Team in Training for LLS we didn't raise money, but it was great to be there and see all those that have been affected by leukemia and lymphoma.

Please continue to pray for all of those that are effected by cancers.

My idea for the day:
Let's just have the election today and everyone take the money left in the accounts and give it to charity!! (My choice would be Curesearch, but any charity will do ;)

Thanks for checking in.

Maria

I am soooooo thankful that we live in Charleston near MUSC Children's Hospital!!!

No comments: