"Whoever said winning isn't everything never had a child with cancer." - Anonymous

Saturday, January 27, 2007

More tests, but no more answers. On Thursday we had another MRI and it showed the lesions had changed. Instead of being bright red now they are dark in the middle with "halos" around them. While this does not mean anything bad, it is also not any indication that they are getting better. One known disease that causes this is toxoplasmosis, which is carried though cat feces. They have done additional tests including an eye exam and ruled that out. So, we are back to really not knowing what caused the lesions, good or bad. Everyone seems to think that it was probably the methatrexate chemo that they injected during his last spinal tap, but they cannot tell us for sure. Next week he will have another spinal tap and they will substitute another drug for that one. After that, we will have to see. The problem is that the methatrexate works...So we will take it one day at a time. He got another round of chemo yesterday and seemed to handle it well. Eli continues to improve and still has not run anymore fevers.

PT came by yesterday and gave him a little walker to encourage him to walk and we walked all the way from the room to the playroom in the atrium, further than he has walked since we arrived at the hospital!! Since it is probably the chemo that is causing him not to walk we can't really fix the problem, just make it so we will have less difficulties after he is off of that chemo. His counts today were 160..up from 140 yesterday...As they continue to fluxuate John and I are hoping for a "spike" to get us to 500 so we can go home....

John spent last night at the hospital with Eli, which I think helped his spirits as well. I was able to go to the boy's basketball games, which was nice for me.

It has really been a great week, one that has given me tremendous hope and helped to give me strength. To see Eli more himself again is such a joy. It is amazing what the smile can do for your day, and week!! Again, I cannot say enough how much of this strength is due to all of the support and prayers that we get every day. It is going to be a long three years or so for us, but we will make it through.

4 comments:

Anonymous said...

Maria and John,
We check your blogspot everyday as we share with you guys your frustration, hope and questions on this journey. The girls pray for Eli at dinner and at bedtime, you are are never far from our thoughts! Your strength through this has been amazing. We miss you! Katherine, Bret and kids

Lori Sims said...

Hey Maria
It was great to see you at church today! Also, it is great to see that Eli is improving! I am praying constantly for him, you and the family...through scripture, songs and prayer...even throughout the night as I hold on to my cross. We will pray you through this...and I pray his healing will be quickened.

Peace & Love to all,
Lori

Ted said...

Maria,
Sharing the "real stuff" in the Body of Christ" has an amazing effect. Your speaking to us at the Vision Gathering on Sunday was a true form of Gospel light that allowed for everyone to, indeed, "see" the inner workings and possibilities of truly belonging to the Body. Even as you draw strength from us,I want you and John to know that your sharing and witness to us about "who we are" gives strength, encouragement, and insight to the very people to whom you are giving your thanks in Christ name. I am grateful for the trend of strength for Eli and for the witness we are allowed to share with you and your family. Much love in Christ, Fr. Ted

Jeff Thomas and Family said...

Dear Crowley Family,
Mary and I just wanted to let you all know that we are thinking about you, Eli, and family. We say a special prayer for you guys each day and night and know that God will help pull your little 'trooper' through. Please let us know if there's any way we can help at all...we'd be glad to. God bless and best wishes!!

Sincerly,
Jeff and Family.