Can I just say...I HATE ORAL MEDICATIONS!!!!!! I know this is harsh....but I am at my wits end with this. I called the clinic and I think tomorrow I am going to go in and have them put a GI tube in so I can give him the meds directly instead of this hellish procedure we are doing twice a day. I am going to do some research tonight and talk to them in the morning, but this may be our only option right now. The nurse told me today that the thing with kids Eli's age is that they pull them out quite often. But I really don't know what else to do. The Phenobarbytol is the med that he hates so much (it tastes absolutely horrid and nothing will mask it) and now he is not wanting to take anything. I have tried everything anyone has mentioned and then some. I am thinking maybe if the tube works we can do that for a while and then see if it gets any better. Right now this is the biggest stress point in my life...I just pray we can get past this and on with things.